Tuesday, November 24, 2009

So Blue

I've fallen behind on laundry. On everything really. Some days somethings (most things) just don't matter much to me. But yesterday, fueled by the need to have clean clothes to wear and caffeinated hot chocolate too late in the day, I finally set about getting some loads washed. In the corner of the laundry room, a tiny reflection caught my eye. The letter on one of his sneakers has reflective tape. Note to self: I must move those in to the storage room where the rest of box-upon-box of all-things-Sekai sit and wait for me to figure out what to do with them.

Not that his belongings aren't elsewhere, but their placements are well thought out. The Mach 6 is in the coin tray in my car. (The Mach 5 was placed in his casket with him, along with other toys and belongings.) The "Move it, move it" Happy Meal character is on my desk at work. (The other one is in his casket as well. We broke our family rule and went to McDonald's twice in one week because though he had given me his character, he suddenly recalled that he was a busy collector, who was now, he claimed, vexed over how he would ever be able to sell them on EBay if his collection was incomplete and...which was code for, Mom, please get your own. So I did.) His little red 101 Dalmations cap from when he was a toddler next to his little Red Chuck Taylor high top next to his bronzed saddle oxford shoe next to the silvered one with the still-empty frame because I cannot bring myself to cut any of the pictures now all sit on the mantle with Blue, his teddy bear.


So Blue is wrapped in plastic wrap and I'm not sure he'll ever be unwrapped or what to do really. When Sekai was taking leave of his body, someone pressed Blue in to my arms for me to focus on. Sekai got Blue when he was 2 years old, and I kept him for him over the away years, just as I had kept the hat, the shoes, other toys, clothes, pictures. He was amazed that I would do this for him. He was amazed that I actually believed I would get him back, that I would even see him again...and it hurt him, since he had long since given up all hope. Even as a teenager, Blue was important to Sekai, important to me, as a symbol of our family ties.

So Blue was clutched in my hands that night while I paced in his room, listening to them trying to get his heartbeat going while he lay on the living room floor. I clutched Blue while I stood in the rain, looking through the ambulance windshield at them trying to get his heartbeat going while he lay on the gurney. I clutched Blue while I listened to them tell me they could not get his heartbeat going again. Somehow I was still clutching Blue when I scooped my baby up into my arms and held his lifeless body. And his life seemed to literally be running out, as the blood from the respirator tube dripped over me and over Blue. I asked them to please take that thing out. I really don't understand why there is a problem with removing the tube once someone is gone, but I don't think I want the medical explanation either. It would just be easier for families, that's all I'm saying, especially when the nurse removes the center piece but not the whole tube, thereby creating a vacuum and a straw by which one's son's body will seep blood on to one. So, in the process, Blue became blood-soaked. And I can't bring myself to wash him. So I wrapped him in plastic. At first, Blue sat by the door where I had placed him when I came in that night. Days passed. Then I realized he probably needed a bath, but I just couldn't wash away Sekai. Some days, I think about where science is going and I wonder if they could clone him. When I went back to the apartment to get his wheelchairs, I found hair on one of them from the last time I cut his hair. I picked it up without thinking. Something of a jolt went through me as I realized I was holding part of him, in a way that I could never again do for real. Again, the cloning idea crosses my mind. Don't judge me.

So Blue, in his plastic wrap, has been carefully placed on the mantle, just as many things have been carefully placed either in plain view or tucked away. But then there are those things that I come across at unexpected moments, like while doing laundry. I passed what appeared to be a piece of clear plastic on the floor last night, and reminded myself to go back and pick it up, but with laundry in my hands when I went upstairs at the end of the night, I guess I forgot. When I went down this morning to get the last of the clothes, the light caught this barely visible object, the glint caught my eye again, and I stopped to pick it up. It wasn't trash at all. Inexplicably, one of Sekai's bracelets was there on the floor. When he was in the hospital after removing his g-tube, where he remained for several weeks after insisting that he didn't want nutrition, he went to an event sponsored by Child Life wherein they gave out those affirmation bracelets that were so popular. He had them in various colors, stamped with various encouraging words. The one I found this morning: STRENGTH. Thanks, Sweet Potato.

Thursday, November 19, 2009

Gotcha

Today is Sekai's Gotcha Day, or Gotcha Day revised, or Gotcha Again Day, or Gotcha Day Again. I just did a quick search to include a link about the reasons behind marking the day, and found all kinds of controversy. I'm not in the mood for all that. To us, Gotcha Day was going to be the day we acknowledged being together (again) as a family. Not his adoption day. We were supposed to celebrate that on National Adoption Day (we were supposed to be one of the celebrating and finalized families)...which happens to be this Saturday...which is the same day as National Survivors of Suicide Day. Did I mention how witty was my dear Sekai? And as I've said before, God has a sense of humor. Anyway, today is Sekai's Gotcha Day Do-Over. We had not decided exactly what we were going to call it. But we wanted to note the anniversary of the day that Sekai came home (again) and we became a together family (again). On this day, last year, Sekai came home. We should be celebrating. We should be getting ready to have our family "signed off on" on Saturday.

I think I may be numb. I thought I would be crying and immobilized, but I think I may be numb. I think I prefer it.

Tuesday, November 17, 2009

"How to Save a Life"

So, I'm a huge Grey's Anatomy fan, and I heard The Fray's song "How to Save a Life" long before it would mean this much to me.

Read more about the song here: http://www.howtosavealife.com/ and here http://en.wikipedia.org/wiki/How_to_Save_a_Life_%28song%29

See the video here: http://link.brightcove.com/services/player/bcpid348471276?bctid=353578845

Read the lyrics here: http://blog.thefray.net/us/music/how-save-life/how-save-life

Sekai, I prayed to God you'd hear me. Where did I go wrong? I lost you somewhere along in the bitterness. I stayed up all night after night after night, trying to figure out how to save your life.

Suicide Awareness and Prevention Week

Active Minds at Maryland partners with Suicide Awareness Health Education and Training (S.A.H.E.T.) to bring a week of activities to educate and raise awareness of suicide.

11/16 11a-2p: 'Get Your Stress Out' @ Stamp Atrium

11/17 6:30p: Ross Szabo (guest speaker) with No Stigma performing "What Smiling Faces are hiding" (Clarice Smith, Dance Theater - http://www.youtube.com/watch?v=Pn1GwgtPDfc)

11/18 12p-1p: Panel Discussion with 2 mental health professionals and 3 students who have suffered with depression or who have lost someone to suicide @ Stamp Colony Ballroom

11/18 3p-7p: Quilt Project for those who have lost someone, those who are struggling with depression, or those who simply want to support this important cause @ Stamp Colony Ballroom

11/19 10a-2p: National Depression Screening Day @ Stamp Food Court 'B'

11/20 10am-3pm: Quilt Display-The commemoration quilt created by the campus community will be displayed in front of Hornbake Library

11/21 1p-2:30p: National Survivors of Suicide Day @ Stamp Edgar Allan Poe Room

http://www.health.umd.edu/YouBelong2009Diamondback.pdf

Wednesday, November 11, 2009

A new take on visiting the cemetery

Yesterday, I re-set Sekai's birthday flowers and added a really nice bow. It was hard for me to go to the store to get the things that I needed. I would just get all flustered. And then I went two or three times and the floral arrangement specialist wasn't there, so I had to keep going back. Yesterday I was finally able to talk to her about how to reset the flowers. And while we were talking, Diana Ross' "Missing You" started playing overhead. I was flummoxed for sure, and had to fight back the tears. But then I thought, ok, maybe now she understands how hard this is for me. And now I'm thinking, hmmm, maybe that wasn't a coincidence.


Sekai's site is covered in straw again. Others who were laid to rest after June have grass. But his site seems to be settling still, so maybe they added more dirt, and therefore more grass seed, and therefore more straw. When we were trying to pick a site, I kept saying I didn't want to be one of those people who comes to the cemetery all the time. It took me weeks to even be able to go back after the service. I think I didn't want to go for the same reason that I didn't even get close to the site on the day he was laid down: I didn't want to be unable to leave the graveside. But now when I go, I feel better. One of the reasons I'm no longer sure about relocating is because his site is here. I'm not sure what it is, but when I go to the site, I feel less...I don't know. It isn't less pain. But there is an odd comforting feeling. For one, I think I like to see his name in print, like to see him recognized. But I also think it is because I can look and see that no more harm has come his way. A deep sleep has befallen him. He's waiting for Jesus to return. His soul has left his body. He hangs out with Jesus all day. Any of those, or combination thereof, or perhaps even alternate interpretations, means that he is at peace. That's what he wanted. How can I want less than that for him?

I'm reminded that people used to lay their kin to rest in their backyards, and I guess some folks still do, though it is illegal around here. I can see the value in that. I used to think that it was a bit morbid to think about kin buried in the backyard, or even like in those cemeteries beside churches. But I get it now. I like to be able to go and see that he is no longer in pain. I'm considering moving closer to Sekai's resting place. I know. I'm surprised, too.

Sunday, November 1, 2009

Sticks and stones/haters

You know, I used to buy into Katt Williams' idea of letting haters propel you to be your star player. And I used to blast Jill Scott's song "Hate on Me"...but since Sekai left, I skip it when it cues up on my DVD.

The problem is that not everybody can take that kind of thing as fuel to press harder. For some people, like Sekai, it confirms the deep-set, nagging, cutting, poisoning belief that one is not as human, as important, as entitled to a space on this earth. I hope we all learn to stop.